Prince Frederik of Luxembourg dies from rare disease
Prince Frederik of Luxembourg, the youngest son of Prince Robert of Luxembourg and Princess Julie of Nassau, has died after a ...
Luxembourg's Royal Family Reveals Prince Frederik Has Died From a Rare Disease at Age 22
Luxembourg's Royal Family has announced the death of Prince Frederick at 22 years old.
Congress has the power to protect patients with rare diseases from price goughing| Opinion
In 2024 alone, more than 140 independent pharmacies have closed their doors, leaving 21 of our 67 counties with fewer than ...
What Is Hantavirus, the Rare Disease That Killed Betsy Arakawa?
Ms. Arakawa, the wife of the actor Gene Hackman, died from the effects of a disease often caused by contact with droppings ...
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POLG diseases: Rare genetic conditions that starve cells of energy and afflicted the late Prince of Luxembourg
POLG-related diseases disrupt the function of the mitochondria, or "powerhouses" of the cell — starving them of energy.
Threat to son's treatment for rare disease 'agony'
A mother has spoken about her "painful" experience over the potential end to her son's life-enhancing treatment for a rare ...
inews.co.uk on MSN8h
The 3.5m people with rare diseases who face worsening treatment and diagnosis rates
Rare diseases affect one in 17 people in the UK, but a Government initiative designed to improve their quality of life will ...
My son’s rare disease diagnosis spurred me to ditch Big Pharma for a biotech startup
Most individuals diagnosed with a rare disease won’t live to become teenagers or adults. I knew what I had to do.
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“Rare” but Not Uncommon: The Hidden Crisis of Rare Diseases
Rare diseases - a medical condition so obscure that even your doctor has to Google. Despite their name, these diseases ...
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Diagnosing rare diseases could soon get much simpler
Impilo's prototype platform scours medical records to pinpoint symptoms of unusual illnesses that are often overlooked by ...
What is hantavirus, the rare disease that killed Betsy Arakawa, Gene Hackman’s wife?
Betsy Arakawa died from hantavirus pulmonary syndrome, a rare rodent-spread disease with a mortality rate up to 50% in the ...
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Oxford-Harrington Rare Disease Centre names co-director
Dr. Matthew Anderson was appointed co-director of the Oxford-Harrington Rare Disease Centre, a partnership between the ...